Return from India

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I haven’t posted anything in my blog for almost 8 months. I just couldn’t. There were too many arrangements to be made, too many efforts that failed; there has been too much emotion and heartache to work through on a personal level, so the idea of writing about it and then sharing it felt like a burden on top of a burden.

And as I’ve written before, even Atlas shrugged.

At one point, maybe it was after the frozen embryos didn’t thaw well while I was in India or when the first, second, and third surrogate didn’t get pregnant in India, my husband told me he didn’t want anyone to know. He didn’t want us to have to live our disappointment out loud anymore.

While I have taken on a vocal stance about our struggles with fertility, not just so others don’t feel so alone but also so that I don’t feel so alone, and while this blog has created a community that has brought us incredible support, and even offers from one woman to be our surrogate and another to donate her own eggs, I needed to take a reprieve from sharing here.

Further, while writing can sometimes be cathartic, other times it is too painful.

And finally, I need to publish this story as a book eventually, so have to divide what I do write between being on here and being in another form and forum.

But for now, I would like to return to that week of when I returned from India…..

Ironically, my father was dying exactly where I had been hospitalized with my incompetent cervix in 2009.  He was in the same hospital where I had given birth, exactly.  He was in the same hospital where there had been that NICU, dimly lit from the peripheral vision of my right, as I was led (first time on a gurney and second and final time in a wheel chair) to the NICU Room, that had brighter lights than at a Pink Floyd show, where I held my infant son for the first and only time – 4 years earlier.

The same fucking hospital. And on the anniversaries of my son’s birth and death.

Sure, I was now in the cancer ward instead of maternity wing. (Interesting that the words that seemed natural for me to use were ‘ward’ – which has a sense of doom to it – and ‘wing’ – which denotes a light and airy feeling.)

I had been wheeled in and out of that exact same hospital from a different entrance than the one where I was now walking in and out of every day, including the day I got back from traveling from India; that Thanksgiving, when I took a cab home after over 30 hours of travel time, grabbed a 5 minute shower, and then raced to the hospital.

The same hospital. Directly across the street from my OBGYN who had brought my baby into the world, who every time I drove to for my annual Pap Smear for the 3 years since Finley’s death I swore I would change doctors, as the entire surroundings of where I would park or where that deli was or where the door was to where I was wheeled in and 2 weeks later out were landmines of traumatic memories.

I was in the same hospital where I was carted out from the maternity ward on a rainy Monday, empty handed, save for some sympathy orchids that some best friends had sent me and some miscellaneous stuff that Craig had brought to the hospital to make what turned into my 2-week stay comfortable (comfortable being a loose term, obviously), and the precious keepsake book that had Finley’s picture, foot prints, and some literature about what bereaved parents like us should do.

Those days – the 3rd and 4th of December, were sacred days, meant for me to feel the emotional tumult that inevitably poured out every year.  But this year I went to the hospital both days, what I know now was a true privilege, making sure the doctors never left the room before we had every answer they could give us; making sure my dad’s lips were not too crinkly from dehydration; playing him music; reciting him poems he’d written; holding his hands; praying.

The Friday after I got back from India my mom and sister and I were there, all 3 of us, together.  As the two of them left, my dad motioned for me to stay, even though there were nurses in the room, waiting to check his pulses and change his pillows.  This was unlike him; before this time, he would always interrupt any one of us in his family to learn what the staff needed to do; he seemed to respect their time, but something had shifted for him: perhaps he realized he had so little time left, and that it was indeed his to do with what he wanted.

“Do you have a name for your baby?” he asked me.  His blue eyes that I’d inherited as bright as they’d ever been.  “Yes,” I answered without a moment’s notice, “and one of them will start with an H.”  (In the Jewish religion, babies are not named after the deceased, but usually the first letter of someone’s name is used as a tribute, so to speak. Finley, in fact, was named for my grandfather Felix. My dad’s name was Herbert.)

He smiled, as it was the exact answer he’d wanted.  I told him our daughter’s name.  And then I told him our son’s name.  Those blue eyes and welled up and he smiled at me, with a gaze so strong I can visualize it now.  He nodded. “That’s beautiful.”

I couldn’t bear to tell him that we weren’t pregnant yet.  And further, that we hadn’t even been able to do the embryo transfer because our 2 embryos had thawed badly.

Two days later, that Sunday, now December 1st, he was having a rough day. They had wheeled him out of the hospital at the crack of dawn to go to Westwood UCLA, and then not been able to perform the procedure that they had planned to do, thus leaving the severe pain in his throat without any chance of relief.

He could no longer swallow and wasn’t allowed any fluids. He asked me that day to help him die.  He looked at me with the intensity you’d find in some old detective movie, where people plot and plan in closed quarters; wearing hats; smoking cigarettes.  “We’re smart. We can do this.  We’ve got to get me out of here.”  He remarked that in Oregon they have physician assisted dying.  “But we’re not in Oregon,” I remarked sadly – feeling defeated that I couldn’t help him; crushed that the conversation had turned so drastic; so inevitable.

There were some pictures of my nieces, his granddaughters, next to his phone, that my sister had brought.  “Do you want me to get some tape and put up these pictures?” I asked.  “NO.  NO, I don’t want to see their pictures. I don’t want to hear about India. I don’t want to hear about your baby.”  Then he stopped himself from this rant and turned to me, with tears in his eyes, “but I want you to know that baby is so important to me.  That baby is so important.  Your baby is going to be so important to everyone.”

FUCK.  Even as I type this I think of the look on his face, and how totally fucking awful it was to realize how much my dad already loved my future babies, his grandchildren, who he would never hold.

“Well you’re going to meet Finley when you go, you know.” I said.  “I don’t believe in that,” he responded.  “It doesn’t matter, Dad, because I know it to be true.”

We left it at that.

And then I returned December 2nd, and he was still lucid and he made funny jokes. That is the day they put him into hospice, the medical world’s way of throwing up their hands and saying there is nothing more to be done, but to make this man as “comfortable” as possible, as he dies.

So I was there that day. And the next, and the following.  To make sure that he was comfortable. To bring treats or a thank you to the staff.  To negotiate with the fucking idiotic hospice administrative lady who treated my father as if he was a file number in a fucking Amazon.com warehouse.

My eldest sister and I would trade shifts, often overlapping, always making sure we repeated every thing we’d heard to each other – perhaps thinking that in doing so we would solve this problem of our father dying – then to my mom, with one of us trying to keep our other sister in the loop.

All this without time to recover from jetlag, to honor Finley’s birthday and the anniversary of his death, and all of this with the devastating knowledge that I had no embryos left.

My father died, Friday, December 6th, 2013 – 4 years and 2 days after my own son had died, in the very same hospital.

I like to imagine that Finley’s soul returned to those same corridors, and led my father to peace.

And while it is now late July of the following year, and I have undergone 8 months of fertility related plotting, planning and failures, to get to the next step in our mission (which is imminent and gives me great hope), it seems like a good time to go back in time, so to speak, and pick up on December 3rd, 2009, the day that everything changed.

To be continued…

Where do I start?

CHECKING INTO THE HOSPITAL:

I went to the doctor on Monday, November 23, 2009, thinking it was going to be a pretty normal 23.5 pregnancy week checkup, and while I was telling Dr. B about the trip we were taking to Florida to visit with Craig’s Dad and Step-mom for Thanksgiving – with plans to leave the next day, as clothes lay on our bed at home, waiting to be placed into our luggage, and our seats already claimed on the American Airlines flight – in his very thick, usually un-discernable Israeli accent, my OBGYN very clearly stated, “You are not going anywhere,” and checked me immediately into the hospital.

Over that next couple of days, I learned I had an incompetent cervix, which meant that the weight of the baby on my weakened or short cervix threatened early delivery; that I would be in the hospital for the rest of the term.  I learned of specific landmarks that I wanted to get to that would ensure the health of my still unborn son, who we had named Finley:

Once I got to week 24, I would get a steroid shot that would expedite the maturity of his not yet formed lungs.

Once I got to week 25, Finley’s chances of survival would rise from 15% to over 50%.

When I met week 28, the percentage that my baby would have Cerebral Palsy and other diseases would decrease significantly.

And so on.

We had a calendar placed in the room, and every day, right after a nurse opened my blinds as I lay in the bed with my head at the bottom of a 45 degree angle – in the Trendelenburg position, which was meant to encourage gravity to keep the baby inside, I would ask that day’s nurse to rip yesterday’s date off the calendar.  I had a sense of commitment regarding my task / mission / responsibility to keep Finley safe, and every day brought me a little closer.

For 11 days and 10 nights I stayed in that hospital with my legs practically in the air so that gravity could do its job and keep Finley in.  Friends and family brought black & white cookies from my favorite deli or my favorite lollipops, flowers, and celebrity tabloid magazines.  Pictures my nieces had painted for Finley were taped to the wall.  My husband, Craig slept there a few nights, and we’d hold hands or he would bring his computer and do work stuff there or we’d watch sitcoms and movies on that horribly small hospital TV, and he would rest his hand on my belly and talk to our baby.

I was permitted 1 shower during this entire time, and had to go to the bathroom in a toilet placed in the bedroom directly next to my bed, as part of the prescription to minimize my physical movement, even though the real bathroom was only 10 feet away.  I grew to hate the period of time that I had to wait for the nurse to come and empty this toilet of my body’s movements.

Every day, multiple times a day, the nurses would check my blood pressure and his heartbeat.  It felt like a new nurse each day, and each one would ask me his name.  “Finley,” I would respond, proudly.  I would show them where he was lying in my belly so that they could find his heartbeat easily; he tended to be in the same, low place.

I was prescribed two different kinds of stool softener so that my body didn’t have to strain too much.  I wasn’t on any special diet other than the usual pregnant woman diet, but I was guided to eat a lot of fruit so as to keep my body regular.

On the morning of December 3rd, 2009, a Thursday, while having a bowel movement, my water broke.  While nothing had prepared me for this, I knew that this was what had happened immediately, as I felt a release in pressure and then saw a strange clear ‘cap’ in the bottom of the makeshift toilet.  I immediately rang for the nurse.  She swiped some cotton swab on my inner thigh, a litmus test of sorts, which confirmed immediately that yes, my water had broken.  It was 9:35 in the morning.

And the panic set in, and who I was before that moment flushed away, as what happened next has entirely changed who I am.  What happened next broke my heart.  What happened next has dictated how I get through every minute, of every day.  It has defined my relationships with myself, with my husband, with my friends, my family and God.  It has changed my very beliefs about life and what my purpose is.  And for you to even try to understand that, I will now tell you a bit about the search for my son Finley.

THE EFFORTS IN 2008:

I guess I first started thinking about him in late 2007, and then Craig and I started seriously chatting about him in early 2008.  So, I was over 2-years sober when we first began our efforts to get pregnant, in May 2008.

I didn’t know that I wanted a boy, and I certainly didn’t have his name in mind.  I just knew that I wanted to have a child with Craig.

Craig and I met in June, 1998.  I was 27.  He was 28.  I let him pick up on me at a great dive bar in Venice Beach called Hinano Cafe, where they serve burgers and beer, have a great jukebox and accept cash only.  It’s not the kind of place I expected to find the love of my life, so we embarked on what I presumed was a summer fling.  Over time, our lust turned into love.  And, despite the years I had spent spiraling into drug addiction – a story for another time, we formed what I like to believe was an enviable relationship.

I don’t remember the details of our first monthly efforts, but Craig and I had been together by this time for almost 10-years, and the romance in our lives had changed dramatically in that decade.  So, from the very first time we tried for our baby, there was a sense of pressure.

In June, we were heading to France for a work conference in Cannes, with plans to visit our favorite spots on the Italian coast afterwards, and as producing commercials was my profession, creating schedules came naturally.  I immediately put together a calendar of my important “woman days”.  I included when I got my period, how long it lasted, how long it had been since the previous one, and made guesstimates based upon the fine reading in those ovulation kits on when we should try.  While I’ll suppose my peers packing for Cannes that year were getting waxed and choosing their favorite bikinis, I was busy calculating how many tampons and ovulation tests I would need on the trip.

The day came on the calendar for us to try, when we were in Bordeghera, Italy, truly the most beautiful place we’d ever been. If this was in the first few years of our relationship, this would have been the perfect place to make love and conceive, but I was all about procreating, and was very, very sick with a bit of exhaustion and some sun stroke, and in between gulps of EmergenC with that oval shaped window in our room overlooking that boardwalk and sea, Craig and I had sex.

For many months in my life I was particularly grateful when I got my period, but the next time it came, I was sad and disappointed, and I decided to be more proactive in our efforts.  I was going to produce this pregnancy!  I went to my gynecologist and asked her what we should do.  She said the first thing was to test Craig’s sperm.  The tests came back that he had a lot of sperm, but there was some discussion about perhaps decreasing any baths or Jacuzzis, and it was suggested that we consider doing Intrauterine Insemination (IUI), also referred to as AI or Artificial Insemination, a process in which his sperm gets cleaned and then put inside me during ovulation – so that we have the best swimmers at work.

We tried again naturally with the guidance of the ovulation kit that August, and still, my period came.  So, we decided to move forward and try AI.

The thing about AI or any fertility effort is that it takes serious coordinating.  One can’t schedule meetings or social plans or vacations or anything having to do with life in advance, as the woman’s bodily functions dictate the plans.

First I would have to monitor how many days it had been since my period, then I would start using the over-the-counter (ovulation kit $35 – $41 depending upon if it was on sale), then I would make appointments with the sperm lab and my doctor to perform the procedure.  It would take 1-hour and $180 to clean Craig’s sperm at the Lab in West Los Angeles.  We would grab breakfast during that hour, after which Craig would return to the lab to retrieve the sperm, and we would rush to the doctor in Santa Monica (since sperm is only ‘good’ a limited time both outside and inside the body) with the sperm kept warm (the tube tucked safely in my bra), with the insemination charges at my doctor coming in at $140.  Then we would repeat all of those exact actions (and costs) the very next day.

And, to compliment those 2 medical efforts thereby truly maximizing our chances, Craig and I would also ‘get romantic’ after the 2nd AI.  I was busy producing all of the planning and definitely didn’t appreciate the stress it put Craig under to perform so exactly; there were windows of time and rules as to when the last ejaculation could be – and I dictated the information in a way that was by no means ‘romantic’.  When we’d finish, there wasn’t a lot of cuddling, but me telling him that he’d done a good job – like he had finished first in a track meet or something – as I immediately held my knees to my chest and asked for a pillow to be placed under me to elevate me at my hips, a physical position that invited his sperm to swim their way to my eggs.

All the while, I was working at a production company as the executive producer, which means I was bidding jobs, chasing leads for possible jobs, going to shoots, helping the directors with their creative treatments, traveling, and overseeing the sales staff and company’s personnel.  Adding this baby production into my daily schedule came naturally to me, but the amount of coordination and the lack of ability to EXACTLY plan stuff kept me busier than even usual.

When I didn’t get pregnant that time, my doctor said we should check my body to see how it was working.  She indicated that the first thing we should test were my fallopian tubes.

I’d been forewarned a bit about the procedure, which is called a Hysterosalpingogram, that it’s uncomfortable and there is cramping and so on, but nothing really prepared me for the very cold blue dye being rushed through my Fallopian tubes and on into my uterus via a tube, with my legs spread open, as they photographed and documented where the fluid is going, if it is moving, whether it is stopping, the shape of my uterine cavity – and so on.

I recall there being some discussion then and there, under the bright lights of the lab in which all flaws are pronounced, by the specialist – who suggested that there may be some sort of bend or intrusion or something on my uterus, but in good form for litigious and medical reasons, the technician wanted to wait to discuss with my doctor.

I was uncomfortable for a bit after the procedure, but had no choice but to switch gears and race to a music video shoot that one of my directors was shooting in Malibu, for a pop star you’ve definitely heard of named Lady so&so.

I started living a dual existence, which reminded me of my years as a drug addict, in that I had to segregate and balance two huge areas in my life; nobody in my professional life would have guessed that only an hour before I was having dye shot up my tubes with a suggestion to take it easy afterwards.

For my next visit, I switched over to a new OBGYN, who was my previous doctor’s business partner in the same practice; Dr. C, my wonderful female doctor with a fabulous Irish accent, thought Dr. B would advance my efforts in my need to find Finley.

Dr B had a very thick Israeli accent and his bedside manner wasn’t as comforting as my previous doctor.  But he would utter short phrases like “I like what I see” and “Perfect, perfect” with his hand pressed against my belly as he moved my ovaries to a place where he could see things better.  He was happy to find how my uterus looked and confirmed my tubes were operating fine, but he saw a cyst that he said needed to go away before we continued our efforts, so he put me on birth control pills for a month.  When I returned the next month, on day 3 of my period, he said the cyst was gone and we could try again, and recommended that I up the ante a bit and try a fertility drug named Clomid.  The Clomid cost was $40, and was meant to stimulate the follicles – which eventually turn into eggs that can be fertilized.  And I also was prescribed HCG, a medication that’s a ‘trigger’ shot, which induces the ovulation at an exact time that then makes the AI efforts even more timely.

On Thanksgiving morning 2008, I was on a conference call with Russia about an upcoming commercial that one of my directors was slated to direct concurrent to racing to see the on-call Irish doctor at their office in Santa Monica, to have her put the trigger shot in my ass.

Thanksgiving.  On a conference call.  Rushing to see the doctor.

And still, a couple of weeks later, my period returned, and the cyst had, too.

So after 7 months of trying in 2008, we had done 3 rounds of Artificial Insemination and still no progress.  And because attaching a monetary value to the efforts helps put into perspective the commitment needed, I will continue to outline the costs throughout this story.

Going into 2009, we’d spent over $3,000.